It has been 7 months since Megan started speech therapy. About 6 months ago, we took Megan to see an ENT who diagnosed her with VPI (Velopharyngeal insufficiency). At that point, he prescribed speech therapy in an effort to improve Megan's speech and scheduled an appt for six months out.
About two months ago, Megan had a hearing screening at speech, which identified negative pressure in her left ear, as well as slight hearing loss in her left ear. The audiologist brought her in for further testing, which confirmed the negative pressure in her left eardrum. They suggested we contact an ENT to find out what would be the next step.
Last week we already had Megan's six month follow up appt scheduled for her speech, so we brought the info about from the audiologist as well.
We explained to the doctor that we have seen some small improvements in Megan's speech, but not what we would have hoped for six months of speech therapy. The VPI combined with the negative pressure in the eardrum is apparently a rare and unique diagnosis, one that her doctor does not have experience with. He suggested we take Megan to the Childrens' Hospital in Seattle for further help in coming up with a solution for her.
Although we were very surprised by this, we are also thankful for the honesty and care of her doctor. He said that each of these two issues seperately can be helped but the combination of the is something that only those at a university hospital will have seen and have treated.
Right now, we are waiting to hear from the doctor when and where we will be going, in the meantime, she will continue to go to speech and we'll keep working at this.
On another note, I have been slowly introducing organic milk products back into Megan's diet and she is doing pretty well with it, so that is answer to prayer!
Megan is such a talented singer, dancer, performer, etc. that I can't wait for her to be able to do it so people can understand what she is saying! I'll let you know what we find out.
1 comment:
Thanks Janelle! I hope they find quick (easy) answers to Megan's struggles with her ear. I've been praying for her every now and then since your Mom was here last.
:-)Leah
Post a Comment